By Robert Klitzman
Within the fifty years for the reason that DNA used to be came upon, we've seen remarkable advances. for instance, genetic checking out has quickly greater the analysis and remedy of ailments equivalent to Huntington's, cystic fibrosis, breast melanoma, and Alzheimer's. yet with this new wisdom comes tough judgements for numerous humans, who combat with worry approximately no matter if to get verified, and if that is so, what to do with the consequences. Am I My Genes? indicates how genuine members have faced those concerns of their day-by-day lives.
Robert L. Klitzman interviewed sixty four those who confronted Huntington's ailment, breast and ovarian melanoma, or Alpha-1 antitrypsin deficiency. The ebook describes--often within the person's personal words--how every one has wrestled with the sizeable implications that genetics has for his or her lives and their households. Klitzman exhibits how those women and men fight to make feel in their challenge and its explanations. They confront a chain of quandaries--whether to be confirmed; even if to reveal their genetic dangers to folks, siblings, spouses, offspring, acquaintances, medical professionals, insurers, employers, and faculties; tips to view and comprehend themselves and their genetics; what remedies, if any, to pursue; no matter if to have kids, undertake, display embryos, or abort; and even if to take part in genetic groups. within the face of those uncertainties, they've got attempted to appreciate those exams and possibilities, stay away from fatalism, anxiousness, melancholy, and discrimination, and locate desire, that means, and a feeling of wholeness. compelled to wander via a desert of moving sands, they chart paths that many others may well ultimately keep on with.
Klitzman captures the following the voices of pioneers, the various first to come across the private dilemmas brought via smooth genetics. Am I My Genes? is a useful account in their adventure, one who turns into all of the extra universal within the coming years.
"An impressive exploration...probing the various roles and implications of genetics in our lives today.... full of incredible insights, this riveting ebook is essential examining for us all." -- Paula Zahn
"Klitzman lucidly discusses the ethical and mental complexities that are available in the wake of genetic testing.... a massive publication for a person who has the genes for pathology, that is we all, and that i suggest it highly." -- Kay Redfield Jamison, writer of An Unquiet brain
"An illuminating voyage during the scientific, familial and existential quandaries confronted by means of these folks at genetic risk." -- Thomas H. Murray, President and CEO, The Hastings middle Show
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Extra info for Am I My Genes?: Confronting Fate and Family Secrets in the Age of Genetic Testing
Hence, one may not realize that one is at high direct risk for it oneself. Doctors also may not give, and/or patients may not remember, genetic details. Not surprisingly, hearing that one is simply at risk can be devastating. When his mother was diagnosed with HD, John, who worked for a financial company, was in graduate school, and dropped out. I just lost it. I took a job and got booted out after a year. I became irrational . . obsessed over whether or not I had the disease. I changed how I viewed myself: from a healthy to an unhealthy person.
Testing Decisions 45 Yet for breast cancer as well, these interviewees differ as to whether the advantages of testing outweigh the disadvantages. ” Others eschew testing because they do not like the potential treatment options—particularly, having to consider prophylactic surgery. Many feel that a mutation-positive result will upset them, and they thus seek to avoid the news. A genetic analysis, they fear, would confirm their worst suspicions, and they would have trouble coping. They do not want to have to deal with diagnosis or its ramifications, and thus do not test.
But I would suggest that the men and women here highlight crucial underlying tensions—for example, whether to test, whom to tell, what 20 INTRODUCTION genetic risks mean, how to view fate, identity, and family bonds, and how others will see them as a result—and that these broad challenges will probably have strong underlying similarities to those that arise among other individuals confronting genetic risks in the future. These interviews are noteworthy, too, because no other book has brought together this breadth of experiences concerning the roles of different genetic markers in individuals’ lives.
Am I My Genes?: Confronting Fate and Family Secrets in the Age of Genetic Testing by Robert Klitzman